OT: Fu** Cancer - advice needed

Submitted by Wendyk5 on

I hesitated posting this here but I know from previous posts that many of you have been through similar things, and I could use some wisdom. A good friend of mine from high school has been fighting leukemia for the past three years. He's basically been a cat with nine lives, but relapsed about five months ago and this time, the treatment was unsuccessful. He left the hospital today and went into home hospice today. He told me he has 2 weeks tops. He lives in Miami and I offered to come see him, along with another friend, but he declined and said he doesn't want anyone to see him like this. We normally communicate via text. I don't want him to think that I've dropped out of his life but I also don't want to push myself on him if he wants to withdraw. What does one do in a situation like this? I asked him if I could do anything for him; he said no. I'm not in contact with his family, only him. This is one fu**ing horrible disease. The past three years have been hell for him. 

LabattsBleu

August 16th, 2018 at 10:30 PM ^

geez... tough call.

I honestly think you and your friend ought to go... i am sure your friend does have he reasons for not wanting anyone see him in that state...but its probably from some misguided notion of not wanting to put anyone out sort to speak.

at the same time, if you are close, i believe that and your friend ought to go see your friend...

as someone going through treatments, i believe that some of the reluctance is not wanting to see their friends/family upset and having those emotions of guilt weighing on him... but shielding friends and family from those painful emotions doesn't lessen that loss, i think it would be tougher not having said your goodbyes when you had that chance too.

again, tough call and there isn't a right answer for it...good luck with your decision

Yooper

August 16th, 2018 at 10:33 PM ^

Go down there but with a plan. Arrange for him to go see an expert (best case Ciry of Hope in SoCal or equivalent). Make him do it and escort to appointment. 

If that doesn’t work spend some time with your friend  

Both scenarios are valuable for you and your friend  

I have been there on both scenarios. Both the outcomes are okay. I also sat out one situation. I will always regret that. 

drewro02

August 16th, 2018 at 10:35 PM ^

I think this depends how close you are to him. My best friend passed away last year on St Patrick’s Day after fighting cancer for 4+ years. We are both military members (he was medically retired on 2013), and I was living in Germany at the time. He let me know that he was entering hospice care and I could come see him. Naturally, I was on a plane two days later. However, he had numerous friends throughout his military career who he was very close with who wanted to see him, but he politefully declined. To be in his position is something I wouldn’t wish on my worst enemy. Tumors had pushed against his spine, and paralyzed him from the waist down and his body was shriveled to a shell of his former self. Throughout contact with all of our other friends, I just told them to respect his wishes and it wasn’t about anyone else but him. The massive amount of weight it must bring to someone knowing the ending of their life is imminent is unimaginable, I think. Plus, he didn’t want person after person coming to tell him goodbye. What our friends did, was all write him a message letting him know what he meant to them. It was a great jesters he appreciated, but he expressed to me how massively overwhelming that was still. I say all that to say that you should really assess how close you are with your friend. If this is your best friend, go. If it’s not quite that, you might want to consider respecting his wishes. Either way, don’t let anything go left unsaid that you’ll regret later. Just remember that this is about him and no one else. Good luck and I’m very sorry to hear about your friend. 

RedHotAndBlue

August 16th, 2018 at 10:38 PM ^

I don't have any answers, I just wanted to come on here to say Fuck Cancer.  My son is in elementary school, and his best friend was just diagnosed.  So yeah, fuck cancer.

Bambam

August 16th, 2018 at 10:39 PM ^

Definitely get on a plane ASAP and visit. You'll regret not getting down there to see him and if you put it off at all it can be too late. 

I waited literally one extra day to go see my Uncle and when I got down there he was no longer able to communicate when he was up talking the day before. 

BlueMarrow

August 16th, 2018 at 10:45 PM ^

Text him and tell him that "seeing him like this" doesn't sound like a deal breaker to you. If you love him, tell him. If you want to see him, tell him. Time to be open and honest, and not hold back. If you are motivated by guilt, not love, leave him alone. If you share love, he will appreciate you and your effort. I'm an old man, trust me. (I know how to text and do fancy keystrokes, though ;)

Bobby Thomson

August 16th, 2018 at 10:47 PM ^

So sorry to hear about your friend.  I can understand your desire to see him, and I can understand his desire to not be seen.  Ultimately, the visit definitely need to be for your friend and not for you.  I would think you will never regret being there for your friend in the way he wants you to be there--physically, text, whatever.

With that said, maybe your friend doesn't want to inconvenience you by requiring you too travel, take time off work, etc.  What if you go to Miami without the expectation to see him?  Remove the barrier of distance and let him know you are there if he wants to see you.  Emphasize you are not trying to force a face to face meeting, but that it's readily available if he wants it.  Express your love and sincere desire to support him in the way he wants to be supported.  He may decide he really wants to see you once you're there.  He may really want to not be seen.  Either way, I would think he would feel love from you, which is ultimately what you're trying to do.

I wish you peace during this challenging time.

Wendyk5

August 16th, 2018 at 10:47 PM ^

To all saying I will regret it if I don't go, I had a similar situation in January. My father was ill and in hospice in Florida. I live in Chicago, so we were waiting for the hospice nurses to give us "the end is near" message and they never did. Other family members were coming and going. Finally someone said to my brother and I, "You need to go. The end is imminent." He died while we were on the runway heading down there. While you might think we have great regrets, I don't. I know my father (knew him) and he didn't want us to watch him die. I had been there two weeks prior when he was still communicating and I had a feeling it would be the last time I saw him. That's when I said my goodbye, even though it wasn't  spoken. 

MGoFunkadelic

August 16th, 2018 at 10:48 PM ^

try calling instead of texting.  hearing someone's voice has a lot more impact than a text message.

just showing up might not be the best route to go if he's already stated he doesn't want people to see him in that condition.

I guess it depends on how close you are too.

 

USMC 1371

August 16th, 2018 at 11:24 PM ^

Go visit. Surprise him and give him a hug. He’s going to die. Dont live the rest of your live wishing you’d told him what he’d meant to you. I wish I’d had the chance to tell Marines what I wanted to tell them what they meant to me before they died. Sender Fi

Neversatisfied

August 16th, 2018 at 11:32 PM ^

I'd go. My dad died 10 years ago from cancer. All the days I didnt visit him when I knew the end was near, all the calls I missed, the day I realized the voicemails deleted themselves after a certain amount of time...... Once they are gone, they are gone, and the world gets a little smaller and more dark. 

Double-D

August 16th, 2018 at 11:42 PM ^

There is not necessarily a right or wrong answer to this.  My buddy cut us all off and that was what he wanted.  But seeing someone you care about before he passes is something to be cherished.  It’s such a tough call but besides a coin flip I would go.  

Walkabout

August 16th, 2018 at 11:59 PM ^

I logged in for the first time to comment on this.  I have had cancer.  And spare me your sympathy or pity . . . I was lucky as fuck and I am fine.  

Go.  Cancer cancels the rules.  Go see your friend.  And you can listen to the bitching about the ass-tasting barium milkshakes for the CT scans and that one nurse who is a complete asshole and the socks with the traction bars that have to be purple for some fucking reason.  

You listen.  And you interject with memories and normalcy and stupid mundane shit.  You are the connection they have to the life they lived before their body betrayed them, and they need to hear from you.  

Show up.  Talk about "the old days." Support him and his family as best you can.  You don't have to save him or fix him or do anything but remind him that he had a life before this happened to him.  

Go.  

 

 

 

 

You Only Live Twice

August 17th, 2018 at 12:03 AM ^

I am so sorry Wendy.  The board does a nice job of giving the pros and cons of going.  I'm in the "respect his wishes" camp.  There is no clear cut right answer, of course, it depends on what you think is the right answer.  

 

Jamezz23

August 17th, 2018 at 12:03 AM ^

Call him and tell him that you would really like to visit and go from there. But if he says no, especially over the phone and not text you gotta respect it

MGoStretch

August 17th, 2018 at 12:24 AM ^

I’m so sorry for your friend and that you find yourself in this position. There have been a ton of insightful replies that hopefully given you some clarity in your decision. Just my $0.02, it is absolutely, entirely dependent on your relationship with them. If they’re your best friend from high school that you speak with everyday and are a godmother to their first born probably implies a different route than your best friend from high school whom you haven’t seen since graduation. You’ll figure it out. Do what you think is best for your friend and that’ll absolutely be the right decision.

Unsalted

August 17th, 2018 at 12:37 AM ^

If you are really close, go see him. Tell him what he means to you. Remind him of all the things that made you two great friends. It's all about the love.

Iceman

August 17th, 2018 at 12:38 AM ^

Sorry to hear...that being said, if I was in your shoes, I would throw him a party, bring him a bunch of weed, and help him enjoy his time

Blue in Medina

August 17th, 2018 at 12:41 AM ^

I lost my sister on Christmas Day last year. At the end she only wanted immediate family to visit and people were turned away. My niece was the gatekeeper and some people were angry, but those were my sister’s instructions.

I would see it there is someone who is helping manage those last days and get their input. You might be taking the trip only to be turned away.

Only you can make the call. I wish the best for you and your friend at this difficult time.

 

 

Go Blue Rosie

August 17th, 2018 at 1:18 AM ^

I would go bc I agree with others who said he may feel it is an imposition and didn’t want to ask, but respect that he may not want to see you when you are there and that’s ok.  If that is the case, you can be helpful - offer to help the family with anything they need.

I’m really sorry, Wendyk5 - for your friend and for you.  Leukemia claimed my sweet father in law and our dear cousin at 41.  Cancer can just f off.  

ThereWillBeNoHugs

August 17th, 2018 at 2:34 AM ^

My uncle died a few years ago from cancer. His kidneys failed. I didn't visit him that first night when I got the news. I figured that I would see him the next afternoon. He went fast and I never got to see him or talk to him again. Not being able to see him one last time and tell him that I loved him hurts to this day. Some people don't want to burden others when things go bad and maybe your friend feels this way. I would go if I were you. Laugh, cry, and love your final moments with your friend. Don't second guess it.

beaker

August 17th, 2018 at 3:05 AM ^

Go. 

I know nothing about football, but my dad was in hospice for 6 months before he died from brain cancer while I was an undergrad, and I subsequently was a hospice volunteer for 6 years until I started med school. AND, I’m just about recovered from my 6th surgery for colon cancer (along with earlier chemo and radiation).

so go, but:

- do it for him and not for you

- don’t expect too much from your friend. He’ll likely be sick, weak, and depressed. I was, although my dad was pretty heroic.  Let your friend set the agenda, don’t force him to be cheerful or contemplative or anything. Sitting there quietly is an option.

- please google things NOT to say to a cancer patient (anything I can do? It’s god’s will. You’re not fighting hard enough)

- although some of the best talks I’ve had with dying patients started with me saying something like “You’re dying. That sucks. I’ll miss you.” Sometimes the patient gets tired of being pitied and is thankful to have a “real” conversation about what they’re feeling.

- if you have the time, do something concrete for your friend or his family: buy them dinner, take care of their pets, mow their lawn, clean their house, offer to put together a phone list of people to call after your friend dies (and make those calls if they want), or anything else you can think of. It really makes a big difference to the family

Just one guy’s opinion. Sorry for your impending loss, he must have been a great friend

MGOTyrone

August 17th, 2018 at 4:41 AM ^

First of all I am sorry for your impending loss Wendyk5.

Second of all I am pretty shocked at the amount of people advising you to completely ignore a dying friends wishes. That seems awfully selfish to me regardless of how well intentioned it may be. Respect your friend and don’t go. 

SkyPanther

August 17th, 2018 at 5:00 AM ^

I'd drop in, with the other friend, by surprise. He doesn't want you to see him like this. But you probably understand what he will look like, and care about him anyway. I would say, I understood what you will look like, but I still wanted to be here.

M Go Cue

August 17th, 2018 at 5:38 AM ^

Hi Wendy,

Going to visit when your friend has explicitly said that he does not want visitors would be disrespectful and making it more about you than respecting his wishes.  It certainly makes it tough but do whatever you can from afar to offer support.  I hope you both find strength and comfort through this tough time.

GVSblue

August 17th, 2018 at 5:50 AM ^

You go visit. You'll never regret it if you go. You'll only regret it if you don't go.

My thoughts and prayers are with you both. If he does pass, I hope he has peace, and that you have support to help get you through the grieving process.

Njia

August 17th, 2018 at 7:52 AM ^

I am so sorry, Wendy. This is extremely difficult, I know. 

My $0.02....

Ask yourself why you want to be there; for his sake, or yours? Only you know the answer; in my experience, guilt and regret are powerful motivation. Those should not be the deciding factors.

Perhaps ask him what he would like you to do to on his behalf to honor your years of friendship. Your own actions in his name will keep his memory alive for you and others, and be a positive entry on Life’s ledger. A friend of mine started a foundation in her late brother’s memory after he was killed in Iraq. You don’t have to do something that profound, but even a little thing can make a big difference for both of you, and it will help you better deal with your sense of loss.

Hemlock Philosopher

August 17th, 2018 at 7:56 AM ^

One of my favorite songs is "Give me my Flowers" by Terry Allen. It depends how close you are with him. My father passed away a little less than two years ago. My uncle called me two weeks before he died and said "If you want to see your father alive, you'd better get out here". I do not regret it and am so very thankful to have seen him, even in such a deteriorated state, before he passed. 

Will you give me my flowers
While I'm livin
And let me enjoy them
While I can
Don't wait til I'm ready
To be buried
And then slip some lilies
In my hand

Gin Child

August 17th, 2018 at 8:17 AM ^

I lost my uncle to leukemia when I was young. I remember my father going to visit him during the last few weeks of his life. If I'm you, I go see him. Show him the compassion and love that friends have for one another and he'll be glad you came. Sorry to hear about your friend.

bcnihao

August 17th, 2018 at 8:48 AM ^

When my father was dying of pancreatic cancer, he didn't let his minister visit him in the hospital until a week before his death.  (And then during the visit, he told the pastor to continue dieting and exercising, but anyway . . . .)  FWIW, I would have been furious if the minister had not honored my father's wishes and had gone to see him in violation of the explicit "no" that Dad stated. 

Your friend might change his mind; in the meantime, maybe send cards, texts, video messages, or whatnot.  (I mention video because chances are that he'd be cheered by "seeing" you, even if he currently doesn't want you to see him.)  And keep in mind that a prognosis isn't always the way things actually work out.  And, yes, "Fu** Cancer."

Elit1st

August 17th, 2018 at 8:58 AM ^

I tend not to post on these boards, but as a physician and someone who has lost someone to cancer I felt the need to. First of, in my opinion I would go and visit your friend, you never want to be racked with guilt about wishing that you could see them one more time. Cancer is a horrible and debilitating disease, especially at the end stages, it is understandable why your friend does not want you to see him like that. I think that if you were to let them know that you were coming they would appreciate it. I know that when my father died of cancer people were visiting him at all hours of the day, it was a comfort to him and to our family. I know this is anecdotal, so you will have to use your best judgement. 

Second...to the people posting random medial advise please stop. It is incorrect, irresponsible, and potentially dangerous. If a water diet could cure cancer, then more people would be on a water diet. Things that show promise in animal models, and limited human trials are often not reproducible when applied to the general public. 

Good luck, I hope that your friend does not suffer too much. 

Magnus

August 17th, 2018 at 9:00 AM ^

Well, this brings up bad memories, but I'll join the conversation, anyway.

If your friend doesn't want visitors, he doesn't want visitors. A lot of times, when animals are ready to die, they go off by themselves and die alone. Humans have a hard time doing that, because we like to sleep in beds and drink water and we don't have fur. If your friend wants to be alone without others around, I think it's totally acceptable. 

He knows you care. At this point there's nothing more you can do except pray (if you're into that sort of thing).

dsizzle

August 17th, 2018 at 9:27 AM ^

This!  That way they still have the power over the situation that so many in hospice crave, but you're supporting them as well.

Another thing that hasn't gotten mentioned much:  once hospice starts, you're often dealing with smaller windows of consciousness, so you're gonna need to get in and get out in short periods of time.  There might not be much time for a conversation, so you might consider tempering your expectations.

In my experience, going there and telling the closest family member that you're here to support him but don't have to see him if he doesn't want works pretty good.

Wendyk5

August 17th, 2018 at 9:35 AM ^

Thanks for your thoughts. They are all helpful, and provide lots to consider. He was my high school boyfriend's best friend so we spent a lot of time together. We were a group of best friends back then, but I lost contact with him. We reconnected on Facebook 8 or 9 years ago, and picked up where we left off 20 years earlier. He told our mutual friend the same thing, that he didn't want us to come. I think we're going to respect his wishes. I spent some time with him last summer in NY while he was getting treatment at Sloan Kettering. He received an experimental type of treatment there, one of only 25 people in the world. It worked for a time, and then it didn't. That visit last summer was great. We spent almost three hours walking around Central Park talking about old times. I may just let that be the visit to remember. 

HL2VCTRS

August 17th, 2018 at 10:06 AM ^

I might also take into consideration the level of support he’s getting from family and maybe friends in the area. If he isn’t alone and wants to limit those that see him that way, then it seems like you sort of have to respect his request. On the other hand, if you get the sense that he is mostly alone in this, then I’d be tempted to get on a plane and make sure he knows he isn’t alone. 

Lots of advice on this thread, but I agree with those that say it comes down to what he really needs and your relationship. 

Sopwith

August 17th, 2018 at 10:47 AM ^

I'm generally with "Team Respect His Wishes," but if you decide to go, bring eyeshades you can put on outside his room and then get escorted in wearing them. That way you can pull the ol' "you said I couldn't see you like this, so I'm not seeing you."  /lawyering

Also, with only a few days left, he just have too many demands from people who want to see him, and at this point he may only want uninterrupted time with family. "I don't want you to see me like this" may just be a polite excuse.

Macenblu

August 17th, 2018 at 11:48 AM ^

This isn't about me but I'm a former hospice social worker and a current oncology social worker.  I only mention it for reference with regards to my advice.  Any feelings you have afterwards will be yours and only yours.  You mentioned that you don't have a relationship with his family so there is no issue there.  We should all be trying to think about what the patient's wishes are in a time like this.  As he has asked you to not come I'd say respecting his wishes is paramount.  You can send him daily texts like "thinking of you" or even something more personal based upon your relationship.  If he responds then it means he is likely enjoying the interaction.  If he doesn't it might simply mean he doesn't have the energy.  Either way, this should be about what he wants at such a difficult time in his life.  Visits over 30 minutes can be exhausting for people in the end stage of their lives.  We always want to "do" things for people because it gives us some purpose but we used to talk about while working for hospice we provided the "Ministry of Presence".  We don't actually need to say or do anything to make someone feel better.  Often times simply being there (or sending a note or text) is all the person really needs or wants.  I hope this was somewhat helpful

Alumnus93

August 17th, 2018 at 12:26 PM ^

go see him.... he is gonna say that because hes embarassed in sense and doesnt want to put you out... my dad did this to me, swore to me not to go visit him after stroke.... i almost didn't.  you'll be glad you did.

 

Blueblood80

August 17th, 2018 at 12:50 PM ^

Absolutely you should go. Sounds like there will not be another chance to see him and you don’t want to be left thinking 2 weeks from now that you wish you did go.

Maize and Blue…

August 17th, 2018 at 1:31 PM ^

Experienced both to some extent and it is a difficult decision.  My grandmother had terminal cancer and passed away five minutes before I walked through the door. Even though I got to talk to her briefly on the phone while driving I was devastated. 

The chemo treatment I had before my bone marrow transplant wiped me out and I asked everyone to stay away for a couple days.  I was thankful they did because I was exhausted and always felt obligated to be talkative when visitors were there.

As difficult as it may be for you, I  would honor your friends wishes. Keep texting to stay in contact and be there for the family when the time comes.

ricosuave

August 17th, 2018 at 6:28 PM ^

My friend had cancer also...and it is indeed sad.  He has since passed, but I was blessed to be able to spend time with him and capture his take on cancer, life, and faith.  Take this as you will, but it is reported that just before he died he sat up, held out his arms, a joyfully cried out “yes!”

Here is part 1 (of 5) of his story.  https://m.youtube.com/watch?v=ThCAn0dvXf8  (the rest will be available on that page)

May your friend find eternal peace.  (It is not too late.)